Google to kick-start medical records program with Cleveland Clinic
Update at 12:19 PM PT: This story was updated to reflect the World Privacy Forum's position on PHRs in general.
Google is set to announce on Thursday that it will be using the Cleveland Clinic hospital in Cleveland, Ohio as the pilot site for its new personal health records initiative.
The Cole Eye Institute (foreground) and the taller Crile Building, which is the flagship facility of the Cleveland Clinic.
(Credit: Cleveland Clinic)Between 1,500 and 10,000 patients at the Cleveland, Ohio, facility will participate in the project's test run, volunteering to have their medical records transferred to their Google accounts. The hospital already keeps electronic records for over 100,000 patients in an internal system called MyChart, but when those personal health records, or PHRs, are shared with Google, patients will be able to use them outside of the Cleveland Clinic. Included in the data will be prescription information, medical histories, and details about conditions and allergies.
"Patients are more proactively managing their own healthcare information," Dr. C. Martin Harris, the Cleveland Clinic's chief information officer, said in a statement. "At Cleveland Clinic, we strive to participate in and help to advance the national dialogue around a more efficient and effective national healthcare system."
"We believe patients should be able to easily access and manage their own health information," Marissa Mayer, Google's vice president of search projects and user experience, said in the same statement. "We chose Cleveland Clinic as one of the first partners to pilot our new health offering because as a provider, they already empower their patients by giving them online tools that help them manage their medical records online and coordinate care with their doctors." Additionally, Cleveland Clinic president and CEO Delos M. Cosgrove is a member of Google's Health Advisory Council.
Google isn't the only tech titan looking to change the healthcare industry. AOL founder Steve Case has launched a new company, Revolution Health; InterActiveCorp has invested in several health-related start-ups; and Microsoft has been working on a medical record service.
But all these "health 2.0" initiatives will inevitably raise privacy concerns, and critics of such projects have already begun to make themselves heard. The World Privacy Forum, which has highlighted concerns about medical identity theft in the past, has already issued a report voicing concerns about third-party PHR systems that aren't covered by the Health Insurance Portability and Accountability Act (HIPPA), which has been in effect since 1996 and requires individuals to be notified when a party other than a patient's doctor wants to access confidential medical data.
Not only is security an issue, the nonprofit has said, so is the likelilhood that marketers and other corporate entities will be able to exploit otherwise confidential data. The World Privacy Forum has not taken a specific stance on Google's new project or on others like Microsoft's.
Google is of particular concern to some privacy advocates because the company already has so much data about its users.
"While PHRs may have some laudable goals," the report by privacy consultant Robert Gellman read, "they are also a tempting target for companies or others that want to evade whatever privacy protections remain in the health care system in order to make a profit."
Caroline McCarthy, a CNET News staff writer, is a downtown Manhattanite happily addicted to social-media tools and restaurant blogs. Her pre-CNET resume includes interning at an IT security firm and brewing cappuccinos. E-mail Caroline. 





Patients could be linked with others with similar illnesses and share information with one another. Patients could opt in to submit their blinded information to clinical research.
What are people afraid of? Some marketer will find out they have ED and start emailing them ads for Viagra? Guess what, it's happening anyway.
What is e-referral?
E-referral allows, with consent, a standard set of consumer health and care information known as the Service Coordination Tool Templates to be shared securely between services.
According to a report by KPMG, the use of e-referral can result in a 30-minute time saving when compared with traditional referral methods. In addition, e-referral enables quicker multiple referrals - an increasingly common requirement for consumers with multiple and complex needs.
Developing e-referral
The Primary Health Branch has worked with DHS program areas and the 31 Primary Care Partnerships (PCPs) to establish agreed standard service coordination practices including e-referral standards, feedback requirements, and requirements to support the consented and secure sharing of client information.
The branch is now working with Victorian and national stakeholders to:
? secure further investment dollars for the e-referral change management and capacity building work of the PCPs; and
? further develop the standards and infrastructure that support e-referral in Victoria.
Services advocate for e-referral
Ann-Marie Deeker, Eastern Health's Emergency Care Coordinator, is a great advocate for e-referral.
'E-referral, and the agreed common practices that underlie it, has supported us to link in more strongly with other services,' she says.
'When we e-refer we know that we will get good quality and quick referral feedback and as a result we feel confident to refer more broadly than before. We love it!'
Further information
More detailed information on e-referral in Victoria is available from http://www.health.vic.gov.au/pcps/publications/ereferral_summary.htm
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